How often should I visit the Cavernous Malformation Registry to update my information?

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How often should I visit the Cavernous Malformation Registry to update my information?

We will send you an email every three months requesting that you visit the Cavernous Malformation Registry. This helps to ensure your contact and health information are current. You may also periodically receive emails requesting you to log in and answer additional survey questions. Your ongoing participation helps ensure that Registry data remains responsive to current research needs.