I am not a CCM patient, but I am the legally authorized representative of an adult-aged patient. How do I sign them up to join the patient registry?

When you click on “Register” on our main page, select that you would like to create a caregiver account and follow the prompts that are given.

• Once a basic account has been created, you will then be able to create an account for your loved one by clicking on “create child account.”
• You will be asked to enter in your loved one’s name and date of birth, and to read through an informed consent form to allow your loved one to participate in the registry.
• To access your loved one’s recently created account, navigate to their on the next screen and click, “Go.” You will now be in their account dashboard and can complete surveys.