Why do I need to agree to an informed consent statement to participate in the Cavernous Malformation Registry?

The Cavernous Malformation Registry wants to ensure that you clearly understand how and why your health data is being requested. We also want you to be fully informed about the risks and benefits of participation. Documented informed consent will allow your data to be used in future research. The informed consent statement and other materials have been reviewed and approved by North Star Institutional Review Board.