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What is the Alliance to Cure Cavernous Malformation Biobank?
The Alliance to Cure Cavernous Malformation Biobank is a biological sample collection program housed at Texas Heart Institute. Biospecimens are very important for future experiments and research to help find a treatment and a cure for CCM. The Biobank allows you to donate blood, cavernous malformation tissue from prior or future surgeries, and other biological samples.
You are not automatically enrolled in the Biobank when you join the Registry. You will consent to join the Biobank separately if you choose to.