What are the potential benefits to registering and participating in the Cavernous Malformation Registry?
Benefits to registering may include:
- Receiving research updates and notifications about research participation opportunities.
- Free genetic testing if you have multiple lesions that can't be explained by a DVA or history of radiation.
- You can compare your survey responses to the registry's aggregated and unidentified survey responses.
- You can store and access your medical records in a secure database, retrievable by you at any time and from anywhere with an Internet connection.