What is the difference between a Patient and Caregiver account in the Cavernous Malformation Registry?

When you click on “Register” on our main page, you will be asked to select either a Patient or a Caregiver account.

• A patient account is for an affected individual 18 years or older diagnosed with CCM. Those individuals will be asked to read through an informed consent form and formally agree to participate in the patient registry.
• A caregiver account is reserved for a parent/legal guardian of a minor-aged affected child, a legally authorized representative of an adult-aged patient, or a parent/legal representative of an affected individual who is deceased. The caregiver can answer questions on behalf of their child or dependent.
• If you are both a patient and a caregiver, please read the next FAQ below.