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Why should I submit medical records to the Cavernous Malformation Registry?
- Your medical records include a wealth of data relevant to researchers, scientists, and pharmaceutical companies interested in cavernous malformation. Medical records submitted to the Registry can help us understand CCM and enable researchers to pursue novel avenues toward a cure. Your name and personal information are removed from your medical records before the Registry shares any data with researchers.
- You can also use the Cavernous Malformation Registry to securely store records, retrievable by you at any time from anywhere with an Internet connection.
- Uploading or linking your medical records is voluntary and not required to register in the Cavernous Malformation Registry.